My
last blog entry saw me back in my little home snug in my king-sized-memory-foam sanctuary all packed and settled back in following our
vacation to North Wales. It was a vacation in the very sense of the
word as, if you remember, we had to 'vacate' the caravan site for
four weeks under the terms of the park licence. Anyway I'm not going
to recap in the way they do on television programmes where ten
minutes or so is spent telling you what happened 'previously'- most
annoying. More annoying, on certain channels, the recap on what
happened before the advert breaks after each advert break and what is
coming up on the next part before the advert break!
Anyway,
I have been away again to Mudeford on a girlie midweek break with Mum
and big Sis. We arrived in a blizzard which thankfully turned to a
fine sunny but cold few days. This break was booked about the time I
became ill after my cortisone injection. I thought I would be well by
the time we went and indeed I was much improved. Most of those awful
symptoms have now gone apart from an overriding feeling of complete
and utter exhaustion. Mum (SuperMum) did all the driving and often
quips that we will do it for her one day – Here's hoping.....
I
managed to get out and about but kept to my own pace and spent some
of the time reading my newspaper in the car while Mum and Sis
trekked a bit further.
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Managed a smile! |
We ventured over to the Isle Of Wight from
Lymington to Yarmouth and took the bus to Totland Bay and enjoyed a
rather cosy meal overlooking the sea.
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Bleak on Hengistbury Head |
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A bit chilly on Mudeford Quay! |
It
was all-in-all quite a pleasant trip but I was glad to get back to the
back-bedroom at Mum's where I spent another week waiting for my
Endocrinologist appointment, the upshot of which is no more
enlightening. I don't have Addisons (Adrenal insufficiency) or Cushing's disease.....
Interesting reading in terms of the stress hormone cortisol.
http://www.nhs.uk/conditions/Cushings-syndrome/Pages/Introduction.aspx
http://www.nhs.uk/conditions/Addisons-disease/Pages/Introduction.aspx
....I never
thought I had - my late husband had Cushingoid syndrome from steroids for his brain tumour so I knew the look of this. However, she did hint that one's adrenal function can
be suppressed by synthetic steroids but this is usually with
long-term steroid use and not just 'shots.' She doesn't hold with
Chronic Fatigue Syndrome, ME or Adrenal Fatigue as these cannot be
proved. She sees these are
money-making conditions and she is in the business of treating only
those that are 'provable'. I don't disagree or agree and it doesn't really matter what she thinks as by now I am pretty much resigned to the fact that I will never
prove that the steroid injections have somehow contributed to my
symptoms. So, I resolved to putting it all behind me with the aim to
focus on:
- Losing
weight
- Reducing
medication
- Exercise
- Eating
healthily
- Stress reduction
- Writing
Since
this resolve I have had the results of more blood tests which
indicate low Testosterone (yes women have it too) and low Vitamin D. I am indeed 'going through the menopause,' but the debilitating symptoms of the last
few months I know are not menopausal per se and the fact they have
now gone is suggestive of this. If they were menopausal symptoms I
would still have them. I have Clinical Depression but would
not say that any health problems I have are only as a result of my
Depression, so although I am Menopausal this is not necessarily the
only reason for my recent health problems. So, it's a bit more complicated than 'it's yer 'ormones dear!'- even though it seems it is my hormones. The
bottom line is, I don't trust doctors!! - and have good reason. My late
husband's brain tumour was tragically misdiagnosed. My late Dad's
Mysathenia Gravis ( most probably as a result of long term anti psychotic use) also. But then the Mental Health system failed Dad
for fifty years. He used to say he would cure himself – I now know how
you felt, Dad!
So
here I am on a nippy Good Friday, back in my place of sanctuary in my little
home in the woods, watching 'The Robe' with Richard Burton catching
up with my blog. My light pod shines on my face (it's too bloody cold
to go out folks!) and Alfie sleeps content at the bottom of the bed.
Hubby has the chicken in the rotisserie which I will partake of with
salad – no potatoes or bread. Breakfast now is porridge with milled
linseeds (good for one's bowel movement – no more Movicol!) and a handful of nuts and Manuka honey. Oh and plenty of zero-point fruit
and just two-point chocolate treats to keep me well and truly satisfied. A
crème egg would be nice but I have resisted and tomorrow I have decided to make a Simnel cake for hubby and yes I will weigh and track my slice on my WeightWatcher's app like a good girl.....
I
end my entry here as I am practising the skill of précis – keeping
it short!
J
x
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Hubby's Simnel cake |